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When people ask me how I know I have abscesses in my belly button, I don’t even have to explain it anymore — I just show them. I show them the many small holes that tell the story my body has been living with for far too long. Each opening is evidence of flare-ups that formed, drained, healed, and then reopened again. It’s not something you can fake, exaggerate, or misunderstand once you see it up close. Living with HS and PASH means learning your body in ways most people never have to. You reco
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Monday August 24th update on Beau. We get to go home - again! We are SO thankful for the incredible care provided to Beau from the nurses, patient care techs, and doctors. He got to go home on oral antibiotics and the drain in. Once the drain has less than 5 mL of output for two days in a row we can return to have it removed. I learned all about drain care and we are ready for home ❤️ #specialneedsson #zbtb18 #appendectomy #abscess #steadfamilychildrenshospital
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